Fall 2024

It's been 6 weeks since the fall of 2024 started and it's been amazing. In October we had our first bonfire with my sister and her boyfriend and their friends and Today I had a college reunion with 2 girls who were my dorm mates in college. Now we are planning for a full reunion in september of 2025 with the rest of the group that couldn't be there during this time. I cant wait. This will also be in time for my annual update with my MS which will be done with another post.  I also think at the end of the year I will be add a page with the full review with everything that has happened for the year of 2024. This post will be a quick post. 

Losing your best friend- Preview so far of 2024

 Hi, 

It's been forever since I posted a lot of blogs. This year has been crazy in itself. Where do I begin, In January we left for Florida for the next 6 months little did we know that 13 weeks later this would be the last time we drove over the bridge as in March 26th of this year the key bridge was destroyed but then again we are kind of getting a head of ourselves. February we celebrated my grandfathers 98th birthday once again who would have know that 5 months later in August that we would lose him which is what this post is about but before i get into it more, I have more to go on with through this year, March he fell and we believe then that he had a stroke because in April and May he continued to go down hill. Also in March as I wrote above was the bridge collapse and the impact that we still feel today. April we lost our neighbors dog Carlos also little did we know 5 months later that we would lose the other dog Shadow. This also included my best friend's father who passed away after surviving a almost tragic car accident in November 2008. May brought my birthday, Mothers day and a trip to the hospital/trauma center with lights and sirens due to MS issues which becomes interesting cause a month later the same thing happens but not at severe as what happen in May. June brought us barley making it home from Florida after an eventful trip with trying to get my grandfather in the camper after loosing his arms and legs from his possible stroke and him being in so much pain coming home not mention the day we get home and trying to figure out how we are going to get him out with just us or whether or not us calling 911 for a lift assist but was able to get his neighbors to kind of help us in getting him in the wheel chair and into the house which was the start of a long 5 months of ups and downs with him and getting hospice involved. It also brought our elementary 100 year Centennial celebration and being able to see all my old teachers and students that I used to hang out with. July came with miserable heat well the whole summer did a 4th of July party, and once again many ups and downs with my grandfather. August was nothing but a miracle in itself between the continuing down fall of my grandfather until his passing at the end of the month to the attempted assassination of Trump at PA rally. The day he passed was the same day as the key bridge collapsed in march and carlos death in April but what was more interesting was that this day August 26th was his mothers birthday my great grandmothers birthday. Now rolls September the funeral of pops which couldn't have been better even though we didn't really do a viewing full funeral that will be mention sometime in the spring of next year when we do a buge memorial service in honor of him which will be interesting between who is all going to be invited or come I know with the people I wanted to invite which is some of my church family who got to meet him over the last couple of summers after having to make shirts and more for parades and other events. To people from our community who saw me post or his obituary and had text me about funeral arrangements. So I'm looking at maybe 100 or so if not 70 people showing up or coming and going.  Im going to miss him. It's been 3 weeks since hes been gone and I still want to call him ect, funny moments with him looking back and know im so bless this year before he started to go down hill was the fact that i normally dont ride with him in FL and I did for those last 3 months until he couldn't do it any more. Im sure this will be a part 2 to this blog as the rest of the months of this year goes by 

Certainly Unknown

Hi guys, 

Wow where do I begin. I know I said I would do another blog to finish the year in review of this year. But one thing has come to my mind the uncertainty of the unknown with my MS. Yesterday I had my annual MS screening with an MRI to see if the treatment is working. As you know this month is September the month of 9/11 as well as my 2nd anniversary of me being diagnosed with MS on the same day. Well I got my results back and did I review of last year's and this year's and it looks like I have gain 41 new lesions since last year. So with that said I'm sad to admit that i went from going to RRMS to SPMS and will continue to decline. I'm still trying to understand this while still coming to terms with MS which I still haven't even after 2 years ago and now this. But my faith is strong and I look at this once again early setback. 

This is the 2nd part of the post instead of going and writing another post of the same thing. As of this morning Friday 20th 2024. I finally got the MRI report that explains whats going on but still is complicated  cause its different to both MS reports that have been given through the MRI scans one is saying 25/16 while the other one is saying 27+4 and 10. But what I do know is there are new lesions and that nerve to my left eye has continued to diminished which means the swelling and so forth has been continuing on since this last attack and is getting worse every time I have an attack.  Like I said I will continue to keep updated on these reports as it comes in and this is good not only to keep you guys updated but my self to look back and see all the good and bad moments of my life. Also once again I can't say for certain that this is what this is without seeing him and getting the confirmation that I need to help me understand all of it. But at this moment it looks like I've been having these flairs for a while now. My next apt with him is at the end of next month. I was hoping it would be earlier because of what I'm seeing and the report but i guess its not really concerning as of this moment. 

Trunk or Treat

Our annual fall fest trunk or treat I have been with the church for 15 years being doing it for 10 years. This years theme was Hocus Pocus from Disney. I will post some of the pics from this year and previous years. 

These 2 were from this year 2023 

2015 or 2016 

2021

My MS Journey

It's been a while probably almost 3 years since I posted and a year since I updated with the 2022 health scare that turn into me being dignosed with MS or Multiple Sclerosis. Since then everything has been pretty good. Still learning about my new dignosed but also celebrated my 1 year of it this past September. I did have my first spell with this one of the issues with mine is heat and cold intolerance where I can't be in the heat because I don't realized I'm cooking myself and same with the cold where I look possessed due to spasms in my body by the cold. I have so much to be thankful for and can't wait for Thanksgiving. With that being said I'm due next week to have my next infusion for the MS. But on a good note when I had my updated MRI it seemed like the meds were working and they were shrinking well one of the big ones I had but now I have a new issue with my cardic stand point. The good news is that they were worried for a TAAA or triple A but they have rule that out for now or so we think but when they did the CT the found some mod-severe narrowing in the aorta from where I had the corartation of the aorta surgery 30 years ago as a baby. They want me to come back to do extended testing including an echo to check if I will need to have surgery or just wait another 2 years or so. So that is the up date for now. I have one more to add for October. I'm going to try to update these at lease once a month if I can. 

Health Scare and the Reason why

 Hello viewers,

I'm back again and like I said in my last post this is an update with my health this last year. My health continued to decline with no answers. This continued until it got worse when the fall of 2022 I became paralyzed after seeing the nurse practitioner and them telling me there was nothing wrong and that I should just go the physical therapy. I was pissed because i wasn't getting the answers I needed and it seemed like I was making it all up and I knew something was wrong and i'm not even a doctor. I forgot to mention the day i saw her I had a major fall before seeing her that almost costed me a call to 911 only because my body was numb and locked up and I couldn't move to get out of the tub which ended up taking be an hr plus before i was finally able. Looking back on this and knowing there were other signs that I didn't think much of until now. A funny moment to this after everything was that shower scene and getting out I looked like Marv from Home Alone 2 where Marv electrocutes himself and hes crawling on his hands and knees shaking thats how i was because i had no strength left to even stand yet alone walk which was the start of me declining in those past two weeks were i was using a cane then walked and now loosing all strength to me being put into a wheelchair. The week after seeing her i was scheduled with my primary care the next week, Once again the rest of the week and the next week I continue to go down hill now i cant state a bath or shower yet alone stand, having back pain and numbness and cold feet in both legs and waist. I can't even climb into my bed now. I'm having spams and shakes that are not normal and uncontrolled. Finally the day comes and it's September 9th 2022 where my dr looks at me and says can I see you walk and I can barely get out of the wheelchair to walk to her before almost falling on top of her, She tells me to sit back down I do and decided to check out my reflex only to find they are not normal reflexes and she is worried about a spine issues she looks at me and tells me I dont feel comfortable sending you home and I think this is spinal problem one that shows paralyses  because i can barely walk yet alone stand she automatically tells me i think we need to red line you to the ER which means you need to go down and im calling down so you can been seen faster. I finally get there which is good because the ER is across the dr office down one floor. I finally get there and they had a trauma team standing by from the ICU there ready to ventilate me due to the fact that i was showing paralyses and were worried about it spreading from my waist were it was and now going higher. Which with good news it never did. They finally called in the neuro team with others after realizing that something wasn't right and decided that it would be a good choice to do a MRI of not only the spine but the head and brain as well. and I will also post some of the scan pics I was able to get including some of the other reports I have. 

Fast forward I finally get the scans and we are waiting and the dr says that they think they know whats going on they came up with 2 things it could be. 1. That it was MS or Multiple Sclerosis or 2. Brain cancer but they had a good feeling from what I was describing that it was number 1 which was MS but they needed confirmation with those scans and another test called a spinal tap but they wouldn't be able to do it until Sunday and that will be another post i will write more of the confirmation of the findings. 

thats it for this blog. 

I'm back

 Hello viewers,

Lots has been happening since my last update. it's been a long time since I last posted almost 2 years or in this case a year and half. The updated post which was posted today was actually back in 2021. My health continues to decline and we still don't know why and that was until last year in September which will be posted more on what was found out other then that between COVID and other crazy shutdowns between that and just in general yeah. Not really much to talk about with this post other then explaining that from 2021 and the health update same old same old,